As one of 1.4 Million Americans who suffers from
inflammatory bowel disease (IBD), this is a frustrating loss, even if it
happened at the state level. We not only battle our own diseases on a daily
basis, but must also fight judgment, misunderstanding, and advocate for awareness.
But for Kerry Dougherty, columnist for TheVirginian-Pilot
in Norfolk , Virginia , this killed bill is a reason for
celebration.
In her article, “Bathroom
bill ends up where it belongs – down the drain,” Ms. Dougherty starts out
by stating, “Nothing
gets some folks excited quite like a spirited discussion of public restrooms,”
and, “I should know,” referring to a past article she wrote on the use of
handicapped stalls. I would like to respond to her article.
Ms. Dougherty, I’m afraid you still haven’t learned the
lesson you should. Your past experience may mean that you “should know” that
writing about restrooms causes some people to get excited about the topic, but it certainly does not mean
you have learned anything from your experience, most certainly not about empathy.
While you may “know” the topic of restrooms stirs up debate,
it is clear to me that you really don’t
know why this is such an important topic to many people – the approximately
1.4 MILLION of us who suffer from inflammatory bowel disease. You don’t really know.
You note that the bill was killed in subcommittee, with out
a single vote of support. This figure is sad, not because you apparently feel
it’s notable, but because it speaks volumes about how misunderstood and
invisible these horrible diseases are.
You call the bill “over-the-top” and say it would have
attempted to “legislate common sense.” I agree! Why should we have to legislate
something like this? Unfortunately, as the saying goes, “common sense isn’t
common.” I WISH this weren’t something that needed to be legislated. Have you
taken the time to read Ally Bain’s story?
It seems common sense should have prevented her incident, don’t you agree?
You say this law was an effort to “as a first resort – to
fix a rare but troublesome problem.” First, this isn’t a first resort (more on
that in a minute). Second, yes, it’s troublesome - extremely troublesome. But
rare? How do you know? How many teens and adults do you think would publicly
admit to having had a public accident? Is this criterion for drafting a bill
that – I’ll state it again – will assist approximately 1.4 million Americans in
performing daily functions? That IBD sufferers must first sign a petition
stating, “I crapped my pants” in order to prove that these accidents happen?
You also say you’re “sympathetic to folks with some of these
bowel ailments,” and that “Sympathetic business folks ought to help when they
can.” They ought to, and I understand they won’t always be able to. But the
issue is, many don’t or won’t. May I again direct your attention to Ally’s
story, or perhaps remind you of the Alexandria
teenager you cited in your article?
You go on to introduce “the flip side.” The flip side to
what, may I ask? It’s apparent to me you did little to no research on inflammatory
bowel disorders. You never presented the viewpoint of any single sufferer of
any of these diseases. You merely presented an, “aw, shucks, that must really
suck” attitude with that pitying nod of understanding that you “know” what it’s
like to need to use the restroom with any sense of urgency. You don’t know.
And then, we get to hear your pedicure story. You witnessed
salon workers doing the right thing, only to be robbed. That was wrong, and I
hate that it happened. Did you consider alternate scenarios? What if that woman
had been an IBD sufferer, and she not only made it to the restroom in time, but no
one’s wallets were stolen? What if that woman had been an IBD sufferer whose
request was turned down, and you had to witness her losing the contents of her
bowels into her pants? IBD may be “rare, but troublesome”, and this may be
Pollyannaish of me to admit, but I still have faith in the human race and
believe that the scenario you cite is also “rare, but troublesome.”
Further, if you read the bill, it specifically states that
access is provided if the “employee toilet facility is not located in an
area where providing access would create an obvious security risk to the retail
establishment.” It is my hope that
such clauses would make business owners consider that such requests might be
made and be certain that they can safely accommodate them.
Finally, you state that, “the best thing Crohn's sufferers could do would be to launch a public
relations campaign to raise awareness.” May I be the first to sarcastically
THANK YOU for your suggestion? This idea is a breakthrough! I may take that and
run with it!
But in all
seriousness, please let me introduce you to the Crohn’s
and Colitis Foundation of America, an organization which spearheads many
fundraising and awareness efforts. Also, you can google “Crohn’s disease” (or
“ulcerative colitis” or “ibd”) and see that many people are doing what they can
to spread the awareness (however embarrassing that can be). The reality is that
in the meantime, we still have to use the restroom - urgently, at inconvenient
times, and in inconvenient places.
So, shame on you.
Not for having the opinion you do, but for failing to research and understand
the driving force behind the Restroom Access Act.
Ms. Dougherty, I would not wish Crohn’s on anyone, even you.
I especially hope that no one close to you ever suffers from this ugly disease,
as my fear for them would be that they would lack the empathy and support they
would need and deserve from you.
Thanks Crohnie Mom for writing this on your blog. I suffer from Crohn's disease ...first diagnosed @ 26; but suffered 6 yrs before that.
ReplyDeleteThanks for reading, Nova. Crohn's disease is a challenge, but I'll never forget how awful it was to be sick and suffering before having a diagnosis and wondering what was going on. I hope you are doing well and enjoying more healthy days now!
DeleteI did e-mail my thoughts to Ms. Dougherty, as well as shared with her a link to my blog post. I have not gotten a response from her, but I also don't expect to.
ReplyDelete